Kat Barlow

I'm walking 35km to cure mito

Kat'S RESULTS!

Start

7:08:06 AM

Finish

1:31:35 PM

Total

06h 23m 29s

I’m walking 35km in The Bloody Long Walk. That’s 46,200 steps in one day!

Hey I am Noah's mum and the Ninjas are walking for Noah.  Noah has mito and he's a little legend with a awesome smile and a wicked sense of humour. But he's also been through so much.

Noah was born prematurely at just 29 weeks. At a young age, all sorts of things went wrong. He was allergic to all food, he needed to be tube fed and he started to have Stroke like episodes which came without warning and each time took a little piece of Noah away. 

 

His condition progressed with frightening speed with his brain damage increasing and long hospital stays. At the age of seven, Noah was given finally a diagnosis of mito. Nothing can prepare you for being told your child has mito, but at least with a diagnosis people wanted to help us. We have the most amazing medical team around us now.

 

Noah is turning 9 tomorrow and  along with mito, Noah suffers from a number of other rare diseases. Noah only has 28 safe foods and is fed through a tube 24/7, which is inserted directly into his stomach. Noah has experienced multiple stroke-like episodes which occur without warning. Each stroke has caused significant brain damage, including to his brain stem. Noah developed a lesion in his spine which meant he has lost the use of his left leg. His muscle also wasted in just weeks, just another part of the mito. The unknown is the hardest part of mito for so many people.

 

Despite everything Noah has been through, he is always smiling…and trying to make others smile. He loves Star Wars and our lounge room floor is covered in lego. He’s building a hospital at the moment complete with MRI and operating rooms, and hopes to be a brickmaster one day. He’s a got a big heart and loves to zip about on his new wheelchair and make grown-ups gasp as his stunts! Ask him how he feels he says, “I choose to be happy.”

My Achievements

Thank you to my Sponsors

$1.09k

Jess And Lianes Waste Solutions

Best of luck We hope you exceed your goal Kind Regards Sue

$500

Simon Baldwin

$350

Lydia Bergantino

$350

John And Elaine Nagle

Go Noah’s Ninjas With much love Granny and Grandad

$217.23

Allan & Vicky Marett

Congratulations on a massive effort Ninja's

$217.23

David Schuppan

$217.23

Adam Elliott

$217.23

Alex Wong

All the best for the walk Kat! Go Noah's Ninjas!

$217.23

Eva Tartaglia

To all the Noah ninjas We can’t be there to walk but we are there in spirit! X much love to you

$217.23

Baker Family

Keep up the great work Noah's Ninjas. Love to all.

$200

David & Michelle Nagle

Go Kat & all the ninjas! Sorry we can’t be there to walk this time but we’re thinking of you nipping mito’s butt! We love you x x

$162.92

Karen And Jo Robinson

Supporting you all the way Kat!!! Go Noahs Ninjas!!!

$119.47

Mike Nagle

All my love xxx

$119.47

Enio And Mina

$119.47

Deanne O’connor

Never Give Up, Keep Going, You Know You Can Do It!

$119.47

Shylo Tui

$110

Shaan & Lisa Tahu

$108.61

I Like It Direct Pty Ltd

Go kat and Noah. Go Ninjis. Big love Annie, Steve and Grace x

$108.61

Jenn Johnson

Fantastic work Kate

$65.17

Angela

All the very best to you and your inspirational son!

$65.17

Rocky Carbone

$65.17

Kath Spiteri

❤🙏 x x

$65.17

Corinne M

Good on you, Kat. All the best for the walk. I just love what Noah said - “I choose to be happy.” What a little legend he is!

$65.17

Deborah Jensen

Let me know when the Newcastle leg is happening and I’ll be there :-)

$60

Helen Barlow

From Annie and Helen.....we’ll be thinking of you.

$60

Laura M

That IS a bloody long way!! Best wishes Kat and Noah and your Ninjas xo

$54.31

Karen Macchini

Wishing you every success hun ❤️

$54.31

Anonymous

Good luck Ninja's :-)

$54.31

Anonymous

Good luck Ninjas!

$54.31

Adam Campbell

Be strong lil man 💪

$54.31

Bianca Sciessere

$50

Kiddy Kats Photography

Always an inspiration, wishing you all the best x

$50

Riona

$50

Mark Gilliland

You got this, Kat!

$50

Brooke & Brenton Mchatton

You guys are so inspiring.. we would love to support you x

$38.01

Anna

You guys...😍xxx

$38.01

Sarah Marsland

Good work tiger

$38.01

Brimble’s

What an inspiring you man Noah is. I hope his wishes come true 💙💙

$38.01

Mary Busby

Go Noah. Have lots of fun !

$38.01

Susie And Jarrod Middleton

$38.01

Chris

$38.01

Bernadette Sutton

So proud of you both x

$38.01

Charlotte Morrow-dick

Your both bloody amazing!! All the best on your bloody long walk!! And I too hope for a cure Noah, big love always xx

$35

Natasha Mills

You and Noah and fabulous! Lots of love to you both xxxx

$35

Loretta Buchhorn

❤️ Proud of you Kat and Co ❤️ Find your stride and we’ll do what we can to see your target ❤️

$35

Valerie And Ian Higham

With love from Valerie and Ian

$27.15

Annie Busby

Legendsssssss xxoo

$27.15

Audrey Kirkilewski-rice

Sending prayers and positive vibes from America 🧡

$27.15

Kaden Honig

To Noah, good luck to Noah’s Ninjas From Kaden Honig

$27.15

Anonymous

$21.72

Robbie Hardy

Kat, you're an inspiration to all of us in being an amazing parent and person, well done on completing that bloody long walk! And Noah - you legend from down under! - you keep doing what your doing... and remember 'May the Force be with you, always.' X

$21.72

April Shanks

💗💗💗

$21.72

Nicole Jakeman

Kat your son is an absolute inspiration. He is growing up so fast into a beatiful young man. So brave and positive. Good luck this Sunday and let's all hope and pray they find a cure for your beautiful little man one day soon xxx

$21.72

Micaela Jowett

$21.72

Aleksandra Acker

All the very best!

$21.72

Rachelle Morton

$21.72

Shelley

Good luck Kat and GO Noah’s Ninja’s!!!!

$21.72

Claire Newman

$21.72

Anonymous

$21.72

Ailia Murray

You guys are awesome. Happy walking. May you reach your goal and continue to make such a huge difference to all the mito warriors out there. Xxx

$21.72

Archer And Tate Wright

Good luck, keep inspiring us all 💗

$10.86

Nik - For Her Box

Been following Noahs journery since the start, I wish I could do more, could do anything and everything for him. He has the best mum in the world and he is such a wonderful boy. Much love.

$5.43

Heather Cox

Your son is amazing. I have a child with a syndrome so I understand the challenges somewhat too. I met Alana's family who has mito who shared your post. I can't give much as so many kids and families need it, but I hope it all helps.