We're walking 35km in The Bloody Long Walk!
Kye’s crew is doing the bloody long walk Brisbane for the 3rd consecutive year to raise funds and awareness to help Australians living with Mitochondrial disease.
Our beautiful son Kye has a rare genetic condition categorised by what is called Leigh Disease with his specific variant being the ABAT gene. There has only been 15 reported cases of this variant world wide and Kye is the only one in Australia. Kye faces many challenges daily but he continues to show us his strength and determination.
Leigh disease affects his ability to create energy for all his cells and organs to thrive. This disease is a rare genetic condition that causes rapid deterioration of body functions. The average life expectancy for this condition is 2-3 years. There is no cure and we hope that one day there will be. We feel so helpless knowing what we know but we want to do something.
Please sponsor our team to fund research into desperately needed treatments and cures for this devastating disease.
Our Achievements
Upload team profile picture
Recruit first team member
Achieve 25% of fundraising goal
Achieve 50% of fundraising goal
Achieve 75% of fundraising goal
Reached team fundraising goal
Our Team Members
Davis HOANG
$50.86
Nathan Gray
$110.00
Abbey Lovejoy
$60.00
James Lovejoy
Alex McEwan
$35.00
Aliese Young
$20.00
Ashlea Martin
$54.30
Robyn Whittaker
Jaxon White
$100.00
Kylie White
Rebecca McEwan
$45.86
Majdy Rizk
$35.00
Nisreen Jamal Al-Awar
Ryan McCarson
$404.39
Keilan McCarson
Julianne McEwan
$152.28
Thank you to our Sponsors
$614
The Ladies Daytime Basketball
$163
Tony
I am very sorry to hear about the challenges ahead for you and your beautiful family and so impressed by your selfless service to one day help others avoid being in the same position. Sorry that I won’t be around in June to support in person, but all the best to all in Kye’s Crew
$130
Anonymous
anonymous maple player :>
$119
Les Godfrey
$118
Marcia Hills
$110
Nathan Gray
$109
Cox Family
It will be like mowing the lawn 200times, run Theo run
$109
Anonymous
Have a great walk. Lots of love from Runners Jam
$101
Facebook Donation
$100
Dave
$100
Jaxon White
$71
Kim
$65
Darryl Monaghan
All the best with your Bloody Long Walk😎❤️🩹
$65
Sean Alger
Stay strong!
$60
Abbey Lovejoy
$60
Soap
$60
Tiffany Kent
Hi David, every single time I see this email from you, I can't admire more how wonderful father you are. Behind you, always have my support. All the best to lovely Kye!
$59
Ryan Mccarson
$59
Heather Mclean
You got this !
$55
George Collins
$55
Samantha Handley
$54
Condy Canuto
$54
Catherine
Incredible effort every year!!!
$51
Facebook Donation
$51
Facebook Donation
$50
Aruna
$43
Combustible Kush
$38
Peter Jones
Good luck mate 💪🏻
$38
Alan Uzarevic
$38
Nico Li
Dave, all the best to you and your lovely family.
$35
Rebecca Mcewan
$35
Alex Mcewan
$35
Majdy Rizk
$35
Lachlan P Muller
$30
Pj
$27
Adam Poulakidas
Yiassssou Theo, good cause and I know you love run so it won’t be a walk
$27
Amira Baki
$25
Sophie
$22
The Newhams
$22
Judy Yearbury
Good on you Theo 🥰
$22
Anonymous
$20
Aliese Young
$20
Little Fawn
Goodluck
$12
Ty
Good luck!
$12
Anonymous
$11
Archer Newham
$11
Rebecca Mcewan
$11
Kerri Puloka
$6
