Sarah Hood

I'm walking 35km to cure mito

Sarah'S RESULTS!

Start

7:33:30 AM

Finish

2:11:52 PM

Total

06h 38m 22s

I'm walking for Maeve. The shining light in our family.

As most of you aware, Maeve was diagnosed at 18 months with Leigh's Disease. A neuro-metabolic disorder where she is left unable to walk, talk and eat without assistance. 

In the last couple of months we have finally had preliminary results back from blood tests to reveal the affected mitochondria in her cells, were unable to match anything else on the international database. This means she's the only one in the world recorded with this fault. Unfortunately this news, means we cannot predict how Maeve will be affected in the near future, due to this finding.

On a positive note, in the last year, Maeve has made an incredible amount of life progress. Since getting her PEG (feeding tube) last June, she has put on weight...we have broken the scales with double digits! Physiotherapy has left her with walking about 4m unassisted with the help of a walker, which she uses daily. And Speech therapy has also fine tuned a handful of words/hand movements that enable her to communicate to us.

Honestly this beautiful being, surprises me everyday with her determination,willingness and fight. I watch in awe of the things she has to go through on a daily basis, things that bring me to tears, because you would not wish this upon anyone. Mito robs her little body of energy, which will eventually lead to organ dysfunction/ failure. 

I don't want Maeve to be defined by this, as it's merely a small part of who she really is. A teeny tiny girl, with the biggest heart and an even bigger personality.

I'm walking 35km in The Bloody Long Walk to help not just Maeve, but all Australians living with mitochondrial disease.

If you want to donate to the cause, we would be ever so appreciative.

 

My Achievements

Thank you to my Sponsors

$217.23

The Dunkley Family

Sending so much to you guys. Such a beautiful family xx

$162.92

Jarod Joseph

You guys are such a beautiful family and have tremendous strength, love and care - very inspiring x love from The Joseph’s

$130.34

Mary Russell

Hi Sarah, Mary (Shibori!) here. Maeve is a gorgeous little wonder and I am inspired by your posts on how she’s going. xxm

$119.47

Anna Mcnamee

We have SO much respect for your beautiful family Sarah, your Maeve is such a blessing ❤️

$110

Jake Egan

$108.61

Erin Power

❤️❤️❤️ from all of us

$108.61

Zoe And Dano O'brien

Go team Maeve! Xx

$108.61

Anthea Gambas

$108.61

Sam Dennison

$108.61

Blisque Salon

$108.61

Katerina Lee

$108.61

Melanie Nimmo

$108.61

Kelly Parrish

$100

Lila, Dusty & Harry X

Xx

$65.17

Jess Hopkinson

So moved to hear Maeve’s story xx a beautiful cause for a beautiful girl

$65.17

Milly Davison

$65.17

Emily Dornbusch

$54.31

Sally O’shea

$54.31

Eliza Grostate

$54.31

Mon Stahl

All my love.

$54.31

Brenda Hadley

$50

Serena

❤️

$50

Cali Fulton

$50

Famlee

You’re just amazing Sarah. Miss Maeve you’re incredibly special and the worlds best hugger.

$43.45

Rhiannon Bergero

Good luck Sarah, lots of love 💕

$38.01

Natalia

With you all the way!!

$38.01

Laura Liles

$38.01

Jodee

You are incredibly lucky to have each other. It really touched me, Thankyou for sharing and sending all my biggest bestest vibes your way!! Gooooooo troopers.

$38.01

Justine Turner

Sending you all love and strength ! Xx

$38.01

Lucy Austin

$35

Christina Macpherson

To you and Maeve and all the rest, who are fighting the good fight. You’re a hero x

$35

Peta Cochrane

Big love x

$32.58

Kahli Hartwig

$30

Tegan Wellington

$29

Jessica Lea

$27.15

The Line Of Sun

Proud of you strong mama x

$27.15

Anonymous

$21.72

Anonymous

$21.72

Goldie Butcher

$21.72

Bianca Buswell

To the beautiful soul; Maeve and wonderful family, i hope this small donation can help you reach your goal.

$21.72

Cassie Cortez

Lots of love 💖💕

$21.72

Aimee Afflick (lueysmum)

You and Maeve are in my thoughts x

$21.72

Rani Viverit

Such beautiful people. Such an inspiration ❤️

$21.72

Emma Smith

Sending you all loads of love and support! Xx

$21.72

Emma Mcdonald

$20

Anonymous

$10.86

Camille Reyanud

$10.86

Marlie Copeland

$10.86

Helen Willis

$10.86

Anonymous

$10.86

Samantha Servodio

Lots of love x

$10

Tanya Pichler

💗

$10

Anonymous

$5.43

Carly Chesbrough

$5.43

Aiyana Fransen