Rare Disease Research Team

We're walking 35km in The Bloody Long Walk!

Our team is walking 35km in The Bloody Long Walk to help Australians living with a Rare Disease, particularly those that affect formation of the head, face and jaws (craniofacial defects; CFD) and those living with inherited metabolic disorders (IMD).

Tens of thousands Australians are living with one of these disorders, which affects not just their health, but also the lives of their family and friends; these poor children need significant healthcare, costly surgical interventions, many faced a shortened lifespan, and unsurprisingly often suffer very poor mental health.

Please sponsor our walk to fund research into desperately needed treatments and cures for these devastating disorders.

Every dollar will make a difference.

THANK YOU!