My Activity Tracking
My target 0kms
07h 34m 54s
Why we are walking
My family and I have signed up to the Mito Foundation’s – “The Bloody Long Walk 2019 - Sunshine Coast” hopefully to raise lots of money for the Mito Foundation!
This is a bit of an insight into why we have signed up...
I have been seeing a neurologist in Sydney after experiencing some weird neurological problems that started with my eyes and double vision.
To cut a pretty long story really short….I recently had confirmation of a diagnosis of Chronic Progressive External Ophthalmoplegia (CPEO) Mitochondrial Myopathy! (Mito) How’s that for a mouthful?
The things I know so far are;
- Mito is a rare genetic, degenerative disease that basically destroys the muscles’ energy cells.
-There are heaps of different types of Mito and no two people have exactly the same symptoms.
- I already have certain muscles that are adversely effected to varying degrees including; eyes, arms, legs, swallowing, voice, etc. etc.
- While there is no cure, I am working with my GP, neurologist and other specialists on an ongoing management plan.
- As each case is different, long term outcomes are impossible to predict.
Unfortunately, in my case it is inherited, which in turn means there is a 50/50 chance of passing it on to my children.This is definitely the hardest part to process.
I am lucky and am still currently working as normal! (as normal as I can be anyway …😊)
I have had phenominal support from family, work mates and friends, all of whom have helped me with this journey so far. I am continually reminded at how blessed I truly am.
…and now you know why I am taking on “The Bloody Long Walk” fundraiser for Mito.
Ok…so if you have managed to read this whole thing and would like to support us doing the 35km “The Bloody Long Walk – 2019, Sunshine Coast”
Thank you so much for your support - it is truly appreciated.
I’m walking 35km in The Bloody Long Walk. That’s 46,200 steps in one day!
I'm walking 35km in The Bloody Long Walk to help Australians living with mitochondrial disease.
I know I’ll cross the finish line exhausted and blistered, but that’s nothing compared to what people with mitochondrial disease (mito) go through every day of their lives.
Mito robs the body’s cells of energy, causing multiple organ dysfunction or failure. It can affect anyone at any age.
Please sponsor my walk to fund research into desperately needed treatments and cures for this devastating disease.
Every dollar will make a difference!
My 35km walk will be bloody tough, but with your support, I know I can do it. THANK YOU!
Thank you to my Sponsors
Sjc Fundraiser - Raffle
Bridget & Scotty Wilson
Ann And David
Rosemary And Steve Hull Hull
Anna And Mike Corboy
Brendan J Macaulay