We’re Walking for Our Son, Ziggy
This year, we’re walking 35km in the Bloody Long Walk – Brisbane to raise awareness and funds for the Mito Foundation. We’re doing it for our beautiful three-year-old son, Ziggy, who lives with an extremely rare mitochondrial disease called Pearson Syndrome.
Pearson Syndrome has already impacted Ziggy’s bone marrow, pancreas, and gut. He struggles daily to get the calories he needs just to grow and thrive like other kids his age. Eating, something most take for granted, is one of his biggest challenges. Yet through it all, Ziggy remains strong, cheeky, and full of love — our little fighter.
This is a cruel and unpredictable disease. Because mito affects multiple systems and is so rare, there’s very little known about how it will progress. We live with the constant fear of what might come next.
But Ziggy is still here. Still smiling. Still showing us what resilience looks like.
We’re walking not just for him, but for every child and family living with mito. With more research, better treatments, and greater awareness, we can bring hope to a future that right now feels very uncertain.
Please consider supporting us. Every dollar brings us closer to answers, and every step we take is for Ziggy.
My Achievements
Sign up to join the Mito Movement
Upload a profile picture
Share my page on Facebook
Invite a friend to join you
First donation to reach STAR status
Raise $200 to reach CHAMPION status
Raise $350 to achieve HERO status
Raise $1000 to reach BLOODY LEGEND status
Raise $2,000 to reach MEGASTAR status
Reach my fundraising goal to cure mito
Our Team Members
David Smith
$366.23
Melissa Stanford
$1,000.00
Samara Nilsson
$276.10
Tory Ogden
Rebecca Cripps
$472.40
Chantelle Cripps
$467.52
Pam Ryley
$349.61
Kath Sherman
$526.39
Megan Gilles
$200.16
Nayara Barbosa
$65.16
Keri Godsland
$35.00
Kirk Deans
$255.45
Alberta Western
$80.86
Michaela West
$35.00
Simon Byrne
$55.00
Chloe Gaedtke
Taylor Pukallus
Nathan Spencer
$205.50
Shana Coetzer
$477.88
Davi Gonzales
Rheannan Close
Thank you to my Sponsors
$35
Keiko
What you're doing is truly admirable and has such a meaningful impact - it's raising awareness for people like me. I'd heard of mitochondria before, but I'd never come across Pearson Syndrome, nor did I know that mitochondria produce 90% of the energy our bodies need to function. Your little fighter, Ziggy has the most beautiful smile! Go Ziggy!
