Noah's Ninjas

The Bloody Long Walk 2019 - Melbourne

We're walking 35 kilometres in The Bloody Long Walk. That’s 46,200 steps in one day!

We are walking for Noah. Noah has mito and he's a little legend with a awesome smile and a wicked sense of humour. But he's also been through so much.

Noah was born prematurely at just 29 weeks. At a young age, all sorts of things went wrong. He was allergic to all food, he needed to be tube fed and he started to have Stroke like episodes which came without warning and each time took a little piece of Noah away. 

 

His condition progressed with frightening speed with his brain damage increasing and long hospital stays. At the age of seven, Noah was given finally a diagnosis of mito. Nothing can prepare you for being told your child has mito, but at least with a diagnosis people wanted to help us. We have the most amazing medical team around us now.

 

Noah turned 9 in May but he still only has 28 safe foods and is fed through a tube 24/7, which is inserted directly into his stomach. Noah has experienced multiple stroke-like episodes which occur without warning. Each stroke has caused significant brain damage, including to his brain stem. Noah developed a lesion in his spine which meant he has lost the use of his left leg. His muscle also wasted in just weeks, just another part of the mito. The unknown is the hardest part of mito for so many people.

 

Despite everything Noah has been through, he is always smiling…and trying to make others smile. He loves Star Wars and our lounge room floor is covered in lego. He’s building a hospital at the moment complete with MRI and operating rooms, and hopes to be a brickmaster one day. He’s a got a big heart and loves to zip about on his new wheelchair and make grown-ups gasp as his stunts! Ask him how he feels he says, “I choose to be happy.”

Thank you to our Sponsors

$1.09k

Jess And Lianes Waste Solutions

Best of luck We hope you exceed your goal Kind Regards Sue

$964

Deanne Oconnor

Ninja Warriors showing determination to walk for a remarkable cause!

$747

Bacchus Marsh Primary School

$543

Justin Watt

❀️

$500

Simon Baldwin

$350

Lydia Bergantino

$350

John And Elaine Nagle

Go Noah’s Ninjas With much love Granny and Grandad

$300

Anonymous

You got this

$272

Finance Design

You go girl, I'll be behind you if and when required! xo

$222

Anonymous

Blankety blank blank. po

$217

Allan & Vicky Marett

Congratulations on a massive effort Ninja's

$217

David Schuppan

$217

Adam Elliott

$217

Alex Wong

All the best for the walk Kat! Go Noah's Ninjas!

$217

I Like It Direct Pty Ltd

Good luck to you all. Go Denise and Louisa. Have fun X annie, steve and grace

$217

Eva Tartaglia

To all the Noah ninjas We can’t be there to walk but we are there in spirit! X much love to you

$217

Mrs H And Family Xo

Thanks for inspiring us every day Noah!

$217

Baker Family

Keep up the great work Noah's Ninjas. Love to all.

$200

Matt Tricarico

With love from all the team at TRI-LEC

$200

David & Michelle Nagle

Go Kat & all the ninjas! Sorry we can’t be there to walk this time but we’re thinking of you nipping mito’s butt! We love you x x

$190

Peter Johnston

Enjoy the Stroll lol :):):)

$163

James Bretnall

Well done Fred on supporting such a great cause

$163

Karen And Jo Robinson

Supporting you all the way Kat!!! Go Noahs Ninjas!!!

$135

Rp

Go do us proud, Lou! You made it to 1k!

$130

Anonymous

$130

Gus N Dee Deane

Go Baby Go

$130

Hannah Horszowski

So very proud of you

$120

Fred Vella

$120

Louisa Hayton

$119

Mike Nagle

All my love xxx

$119

Stephen Hanley

Good luck

$119

Enio And Mina

$119

Victoria Cook

Enjoy your “bloody long walk”!

$119

Ian Leighton Horsemanship

Go Lou

$119

Slocombe Excavations

Good luck Lou, go get em.

$119

Elena Currie

$119

Deanne O’connor

Never Give Up, Keep Going, You Know You Can Do It!

$119

Shylo Tui

$110

Genevie Pusterla

Good luck gorgeous Weeza.

$110

Anonymous

Proud of you honey. Xxxxx

$110

Roslyn Melling

πŸ’šπŸ’šπŸ’š

$110

Shaan & Lisa Tahu

$109

Victoria Landells

Epic effort Julie and Mark!!!

$109

Complete Commerce

Walk well for little Noah.

$109

John Vella

$109

Anonymous

Go Anna, I am sure you will make it all the way...

$109

Fred Vella

Go Jas, look forward to taking this walk with you this year.

$109

I Like It Direct Pty Ltd

Go girl. This is simple This is easy This is fun 😊

$109

Yvonne Muller

Well done to all involved.

$109

I Like It Direct Pty Ltd

Go kat and Noah. Go Ninjis. Big love Annie, Steve and Grace x

$109

Dianne Van Vliet

Go guys , good luck

$109

Anne Phyland

Awesome work. Lana Ninjas. Sorry I’m not able to do the whole walk but will b ether with Lucy to meet you for the last five .

$109

Melinda Williams

Character in abundance! An inspiration to all!

$109

Jenn Johnson

Fantastic work Kate

$75

Montessori Gold Coast

$68

The Real Dads Of Melbourne

Such a wonderful cause πŸ’•πŸ’•

$65

Nita Bhatiani

Go Noah and his Ninjas !

$65

Lee Campbell

You go girl x

$65

Anonymous

$65

Angela

All the very best to you and your inspirational son!

$65

Rocky Carbone

$65

Richard Levett

nice work chops, have fun :)

$65

Shane Thomson

In threw the nose out threw the mouth breath Freddy lol good luck

$65

Leesa Attard

Great job Mark!! Well done on a bloody long day of walking πŸ‘πŸ»πŸ‘πŸ»

$65

Christine Redmond

$65

Slavko Todic

Have a good bloody long walk uncle Fred.

$65

Daniel Matthews

$65

Kath Spiteri

β€πŸ™ x x

$65

Corinne M

Good on you, Kat. All the best for the walk. I just love what Noah said - “I choose to be happy.” What a little legend he is!

$65

Keith Family

$65

Sam Rigopoulos

Well done Elena, good luck!

$65

Anthony Hudson

Amazing work!

$65

Williams Brett

Well Done to all of you πŸ‘πŸ‘πŸ˜Šβ˜€οΈ

$65

Deborah Jensen

Let me know when the Newcastle leg is happening and I’ll be there :-)

$60

Helen Barlow

From Annie and Helen.....we’ll be thinking of you.

$60

Calvin Pusterla

$60

Danny

$60

Laura M

That IS a bloody long way!! Best wishes Kat and Noah and your Ninjas xo

$60

Annie Carroll

You're an inspiration and an absolute champion. Lots of love xxxx

$60

Elena Currie

$54

Sally Koerner

What a great thing to do for such a good cause and for yourself. Good luck with it all x

$54

Samuel Logan

Good on ya Fred 35ks is a long walk :)

$54

Mackenzie Quick & Family

Go Ninjas

$54

Anonymous

$54

Bec Morton

You guys are the best. X

$54

Karen Macchini

Wishing you every success hun ❀️

$54

Anonymous

Good luck Ninja's :-)

$54

Kathleen Jephson

Keep up the good work Y! 😘😘

$54

Finance Design

Well done mate!

$54

Ness

You are amazing!

$54

Ron Fair

$54

Amelia And Georgia

Go Daddy! Love Amelia and Georgia!

$54

Laura Leahy

You’ve got this x Laura and Sebbo

$54

Anonymous

$54

Bradley Fernando

Nice job lovely and I'll hopefully join you for a wine or two at the end xx

$54

Anonymous

Good luck Ninjas!

$54

Adam Campbell

Be strong lil man πŸ’ͺ

$54

Ness Simpson

All the best Spunky x

$54

Clare Ryan

You’re a Champion. Go you good thing!

$54

Trevor & Karen Kick

Go Amy...keep doing good things!

$54

Rob & Julie Jacobs

$54

Andrew Koerner

Good on you and good luck Sash πŸ˜‰

$54

Rose

Bless your big beautiful heart! ❀️

$54

Geoff King

$54

Bianca Sciessere

$54

Megan Gaukroger

Keep up the awesome work team. Am proud to know and love Noah

$54

Sharlene Spiteri

$54

Debra Steers

You are amazing!

$54

Charlotte Kennedy

Great gorgeous lady. Wishing you all the best. Matt and Charlotte xx

$54

Andrea Cochrane

$54

Morgan Fava

$54

Sally

I know you’ll have fun!

$54

Jane Darrou

Good on you Yanna. You are such a lovely and generous person. Hope it goes well.

$54

Jenyce

All the best Elle! Hope you don't end up too blistered!

$54

Victoria Cook

Well done team!

$51

Alicia Hannah

$50

Kiddy Kats Photography

Always an inspiration, wishing you all the best x

$50

Denise & Chris Frazzetto

Good luck Noah’s Ninjas!!

$50

Riona

$50

Eileen Condon

Good on you Jas. Very proud of you xx

$50

Mark Gilliland

You got this, Kat!

$50

Matthew Weston

Hope the weather holds!

$50

The Hudd’s

You can do it Sasha!!!

$50

Courtney + Jake

What a task guys, I am sure you will all smash it!! <3 Courtney + Jake x

$50

Tamara T

$50

Rob Florence

Happy walking, Groges. Big walk; great cause

$50

Jessica Salvestrin

Well done dude!! I’m proud of you xx

$50

Cheryl Wood

Awesome effort!

$50

Gavin De Zylva

Good luck Fred, hope the feet aren't too sore at the end!!!

$50

Deb Mackley

Good on you Mel Hope you have good shoes & bandaids One step, two steps, three steps, repeat, repeat

$50

Pauline Samson

You have my support xx I will be thinking of you. Good work Allison xx

$50

Katrina Grant

Well done guys!

$50

Lisa Wagner

$50

Renee

You're an absolute legend Noah!

$50

Brooke & Brenton Mchatton

You guys are so inspiring.. we would love to support you x

$50

Vicki

Great job Diana

$49

Abbie Chapman

Well done Noah’s Ninjas! You have all worked so hard, very proud of you all, love The Chapman’s Xx

$45

Daniel Kennedy

Go El!

$43

Bert Horse-osky

GO GIRL. I AM RIGHT BEHIND YOU!!!! And love you madly!

$43

Candice Ortisi

Good luck! Sending our love! xxx

$43

Carolyn Shannon

$40

Eddie Blass

$38

Anna

You guys...😍xxx

$38

Bernadette Tilburn

Go Noahs Ninjas. You can so it. ~ clapping loudly :)

$38

Larissa Samuel

Good job Ele!!

$38

Sara Rizvi

$38

Aaron Roach

$38

Dr Jed

$38

Anonymous

$38

Sarah Marsland

Good work tiger

$38

Colin Gudgeon

Go team! Awesome effort.

$38

Jen Mcbride

Well done Lana πŸ‘πŸ»

$38

Laura Morley

Love your passion to do the Bloody long walk for a great cause x

$38

Brimble’s

What an inspiring you man Noah is. I hope his wishes come true πŸ’™πŸ’™

$38

Danielle Konstantas

Go Diana. All the best for Cure Mito

$38

Shirley Mitchell

That’s the secret mate !!!

$38

Mary Busby

Go Noah. Have lots of fun !

$38

Elise Jordan

Well done to Noah’s Ninjas! He’s an amazing little boy with a huge and infectious smile.

$38

Dexter

$38

Natasha Howell

Good luck, u are truly a beautiful soul inside and out forever grateful for ur friendship

$38

Vinnie Russell

What a great cause. I’m sure you will all smash it. Good luck

$38

Peter Hehir

Go Lou 😎

$38

Susie And Jarrod Middleton

$38

Pamela Bailey

Good Luck 😘

$38

Amanda

$38

Meg Watson

$38

Aidan Nuhanovic

$38

Sally

Go Amy xxxxx

$38

Chris

$38

Bernadette Sutton

So proud of you both x

$38

Andrea Bell

$38

Charlotte Morrow-dick

Your both bloody amazing!! All the best on your bloody long walk!! And I too hope for a cure Noah, big love always xx

$38

Tatjana Agius

So inspirational Kat both true warriors!! We love you Noah xox

$38

Anonymous

$38

Samantha

Good Luck!

$38

Phyllis Currie

Go el

$38

Tillie Sula

πŸ’œ

$38

Christine Redmond

Good luck girl! Super woman that ypu are!

$38

Anonymous

$38

Jesse R Tamez

Namaste' Sasha

$35

Stephen Calvert

I admire what you’re doing, Yanna. Well done.

$35

Andrew Burford

Good luck Nat xxx Uncle Andrew and Uncle Mandy

$35

Deborah Hicks

$35

Anonymous

Good luck Sash! X

$35

Jenni Mitchell

Top effort Yanna.

$35

Troy

Go Girl

$35

Clare Harrison

$35

Anonymous

Go Diana - such a great cause - and it IS such a bloody long walk!

$35

Natasha Mills

You and Noah and fabulous! Lots of love to you both xxxx

$35

Loretta Buchhorn

❀️ Proud of you Kat and Co ❀️ Find your stride and we’ll do what we can to see your target ❀️

$35

Janine Dent

We will be cheering you on. Well done

$35

Yanna Jephson

$35

Anne Phyland

Great work Alli.

$35

Anne Phyland

Grea work Hannah. πŸ‘

$35

Anne Phyland

Great work Amy.

$35

Joey Condon - My Favorite Uncle

Go you good thing !!!!

$35

Til Hoey

Good Luck!! ❀️

$35

Christy Matthews

$35

Hannah Williams

As you know I think you are a legend!!

$35

Denise Blackney

$35

Valerie And Ian Higham

With love from Valerie and Ian

$30

Sarah Missen

You’re so kind Love Sarah, Matthew and Henry

$29

Jasmina Shannon

$27

Pat Hehir

Good luck Lou, you can do this, we are cheering for you

$27

Alicia B

Good luck legend!! ❀️

$27

Anonymous

Good luck Ninjas :-)

$27

Anonymous

Good luck Ninjas :-)

$27

Anonymous

Good luck Ninjas :-)

$27

Debbie.argy@gmail.com Argyropoulos

I like people who walk the talk 🚢🏼‍β™€οΈπŸ™‹‍♀️

$27

Annie Busby

Legendsssssss xxoo

$27

Audrey Kirkilewski-rice

Sending prayers and positive vibes from America 🧑

$27

Carl Millar

You can do it Lana!

$27

Megan Perera

Good luck! xx

$27

Sbsa Lee

Top work Sash, just keep plodding πŸ˜‰

$27

Kaden Honig

To Noah, good luck to Noah’s Ninjas From Kaden Honig

$27

Ron Hayton

Bet you have sore feet!!!!!!!!!!!!

$27

Robyn Millar

All the best to you and your fellow ninjas. Truly inspirational.xo

$27

Sophia

Good luck!!

$27

Anonymous

$27

Nicole Zois

Noah, you never cease to amaze us. Keep that happy face always.

$27

Chloe Williams

Go Team!!

$27

Jenny Taylor

$25

Joanne Williams

$22

Tracy Edgar

Good luck !!

$22

Anonymous

Love your work Noah and ninjas!

$22

Robbie Hardy

Kat, you're an inspiration to all of us in being an amazing parent and person, well done on completing that bloody long walk! And Noah - you legend from down under! - you keep doing what your doing... and remember 'May the Force be with you, always.' X

$22

Kerryn Robinson

Good luck. Safe walking. I hope that they find a cure fof Mito Disease.

$22

Sue Hambleton

Awesome effort ninjas and especially Noah!

$22

April Shanks

πŸ’—πŸ’—πŸ’—

$22

Sue Doughty

Good luck!

$22

Rhiannon Wright

How could we not sponsor u πŸ’—Good luck xx

$22

Nicole Jakeman

Kat your son is an absolute inspiration. He is growing up so fast into a beatiful young man. So brave and positive. Good luck this Sunday and let's all hope and pray they find a cure for your beautiful little man one day soon xxx

$22

Rebecca Wise

$22

Anna Tavilla

$22

Leah Doyle

You got this Loulou!!! xoxoxo

$22

Brooke Thomas

Good work J x

$22

Micaela Jowett

$22

Jessica Tehan

$22

Aleksandra Acker

All the very best!

$22

Paul And Geraldine Williams

Good luck Lana ♥️

$22

Rachelle Morton

$22

Mary Gordon

Go girl

$22

Shelley

Good luck Kat and GO Noah’s Ninja’s!!!!

$22

Claire Newman

$22

Anonymous

$22

Anonymous

$22

Ailia Murray

You guys are awesome. Happy walking. May you reach your goal and continue to make such a huge difference to all the mito warriors out there. Xxx

$22

Kirsty White

You go girl!! Awesome effort!! Hope you raise some funds for mito! Love you xox

$22

Archer And Tate Wright

Good luck, keep inspiring us all πŸ’—

$22

Lisa Craig

What an inspirational young man you are Noah

$22

Candice Dimieri

All the best Kat! Noah, you are an inspiration to All

$20

Danielle, Max And Harry

Well done Noah and Ninja's!! From Max and Harry O'Connor

$20

Anonymous

$20

Jenna Wittick

Well done Hannah! Such a great cause!

$20

Michelle Ross

Your amazing xx

$20

Anonymous

$20

Lilian Baker

Good luck have funπŸ˜‰

$16

Haylie Adair

All the best

$16

Lisa Cumming

$15

Hannah Van Stebbing

$15

Georgie Barton

Good on you Sash and good luck! Xx

$12

Alecia M

Well done Jazz - amazing effort!!!

$11

Nik - For Her Box

Been following Noahs journery since the start, I wish I could do more, could do anything and everything for him. He has the best mum in the world and he is such a wonderful boy. Much love.

$11

Hayley Wilson

$11

Gayle Ogston

$11

Haylie Adair

Top effort yo you all xx

$11

Kylie Young

XX

$11

Jan Lyons

Oliver and Mackenzie's ->NanJan

$11

Michelle Kleeham

$11

Erin Cairns

$11

Michelle Simoni

Go lana πŸ‘Œ

$11

Laura Eskici

Good luck!

$11

Mil & Luccas Whitlow

Go Amy! You are awesome

$11

Laura Smith

Goodluck Lana and what a great thing to do for a great cause.

$11

M!nt Family

Go Jas πŸ‘ŸπŸ¦΅πŸ•Ί

$11

M!nt Family

Go Marie πŸ‘ŸπŸ¦΅πŸ•Ί

$10

Kerri-anne Williamson

$7

Marie Suttie

$5

Zyleigh Smith

Supporting everyone walking for Noah

$5

Heather Cox

Your son is amazing. I have a child with a syndrome so I understand the challenges somewhat too. I met Alana's family who has mito who shared your post. I can't give much as so many kids and families need it, but I hope it all helps.

$5

Kim Che