Raising money for MITOCHONDRIAL DISEASE.
Our girl Maeve is now 4 and a half. She suffers from a Mitochondrial disease called Leigh's Syndrome.
Maeve is unable to walk, talk or eat without assistance (feeds via a feeding tube). She has shown so much improvement this past year, and we are so proud of her persistence and determination.
We have been lucky enough to get NDIS funding which now means Maeve has access to more specialists and equipment than we were able to provide her initially.
She has recently got AFO's (leg braces) and specially made shoes which have given her the opportunity to walk small distances unattended without her walker. This in particular has been amazing, to watch her confidence flourish and how happy something like walking unsteadily for 5m can make her. Brings tears to my eyes, that the small things are truly so special.
Unfortunately Maeve's eyesight has deteriorated this past year, so she now sports a cute pair of glasses. The day she got them was quite emotional. It was like watching someone see again for the first time. She knows how important they are, and loves wearing them everyday.
We have supported the Bloody Long Walk the last 2 years, and believe the Foundation are doing great things in bringing awareness to the cause, extensive research, and ultimately doing everything they can to finding a cure.
This year, I'm walking 35km from 1st - 10th August in The Bloody Long Virtual Walk to help Australians living with mitochondrial disease.
If you could spare a dollar to donate to the cause, Maeve and our family, would be ever so grateful. A cure might not happen in Maeve's lifetime, but this is for the future.
From the bottom of our families hearts,
Thank you to my Sponsors
Wendy And Craig Hood
Kathy And Darren Hood
Val Daryl Hood
Jordan, Dakota And Kyla Xo
Annika, Sean And Mikey
M & E Kindred
Bec & Grant Gibbs
Liz Garrett & Darren Thorne
Jaq And Winter Jennings
Dazed But Amazed
Caitlin & Troy Cochrane
Zoe De Silva